Last summer I started to notice that when Reese was looking at me his eyes looked a little funny. I couldn’t really pinpoint it, but something seemed just slightly off. Then one day when he was sick with a stomach virus and really tired, I snapped a picture to send to my husband, and I saw that his left eye was really turned inward and not focused on the camera. About a week later we visited an Ophthalmologist, just as a precaution since there was a lazy eye trait in my husband’s family. He walked in, simply covered the eye that seemed normal, and Reese (not yet 2 at the time) moved his head to see around the doctor’s hand. The doctor then covered the funny eye, and nothing. No movement. No brushing his hand away. It was like he had no idea that he was covering his eye. The doctor simply looked at me and said, “Do you know what this means?” Right then, my nursing background kicked in and I knew it. He couldn’t see out of his left eye! Well, as we have learned more information about my special little boy, we also learned that he has a genetic disease called Ehlers-Danlos Syndrome. Because of this, his connective tissues were weak and caused decreased blood flow to his eye during fetal development, giving him very low vision. Since all of our discoveries, Reese has been through quite a lot- eye patching, glasses fitting, learning to wear glasses, bilateral eye surgeries, and is starting physical therapy this week. And he’s been a pro every step of the way.
Since you don’t see many small children with glasses, I was really excited when on an AppleCheeks Facebook group (thanks for the addiction Mama Harper!), another mom introduced me to an awesome family company called Eye Power Kid’s Wear.
The family started Eye Power Kid’s Wear when their son was born with a congenital cataract and had surgery at 4 weeks old. He now wears glasses, a contact lens, and a patch for part of the day until he can have another surgery. Because of this, they specialize in kids’ and adults’ accessories that complement their special eye conditions- whether it’s patching, glasses, or an eye disease. They have shirts, stickers, eye patches, some frames, and even superhero capes. And oh what I would have given for some cute eye patches and the shirts that make them look cool! But since we’re not patching currently, I chose from their super cute line of glasses shirts. Although I really loved the shirt with the phrase “Yes, my glasses are real” (you wouldn’t believe how many people would ask if his glasses were a toy, or better yet, ask if he was playing “pirate” when he wore his patch), we chose the “My glasses give me superpowers!” shirt.
When I first showed him the shirt, he loved the stars right away and noticed how well they matched his glasses. But once I read what it said to him, he was IN LOVE! He ran around the entire day at the park telling all of the other kids that his glasses gave him super powers! It was also a really great conversation starter for the parents that always want to ask about his glasses but don’t know how.
The quality of the shirt is great, and after washing the design still looks brand new. I was really excited to see that it was a nice screen print, and not the iron-on style you sometimes see on shirts. Plus, Eye Power gives you the option of adding snaps to the shoulders and attaching an actual cape. I think that may be in our future if he finds out he can have a cape too!
Eye Power Kid’s Wear also sent us a bunch of really fun stickers with our order that the boys loved playing with. I really liked the glasses stickers, and I’m looking for a good place to use them. The “I destroy patches” sticker completely described Reese for the first month of patching!
Aren’t they cute, hehe???
Make sure to check out Eye Power Kid’s Wear for their adult clothing too! I thought about grabbing a cute shirt to match Reese, and I really like some of the adult selection clothes.
And since we’re talking about glasses, I wanted to mention the Great Glasses Play Day that is coming up the first weekend in May. It’s a fun play day with locations around the country to celebrate children in glasses, contacts, or patches and a great way to support parents of those children. Check it out to see if there’s a location near you!